Scott Parazynski’s polar adventures

We just received these fun photos from astronaut, explorer, Everest summiteer and TEDMED speaker Scott Parazynski, MD, back now from his shift as the medical officer of the Center for Polar Medical Operations at the University of Texas Medical Branch (UTMB).

Holding up the world.

His description: ”One is my Atlas photo at the South Pole, and the other is a fun jump shot on the shoulder of Mt. Erebus at 11,200 feet above sea level – the southernmost active volcano in the world.”

Scott Parazynski at Mount Erebus

One has to wonder: What’s next on his bucket list?

Live online event today: Whole-patient care

The number of medical specialists (and specialties) continues to grow while the number of primary care physicians continues to shrink.

In the process, the goal of fitting all these specialties together for effective whole-patient care becomes ever more elusive. How can we treat the whole patient rather than the disease?

Join our Great Challenge team of health leaders for a live event today from 1-2 PM EST to discuss whole-patient care. Ask questions on Twitter @TEDMED #greatchallenges – the group will answer selected questions on air. John Nosta, EVP of Ogilvy CommonHealth, will moderate the chat.

Click here to access TEDMED’s Google Plus event page.

How can we better support caregivers?

An estimated 44 million people provide full-time or part-time care for the elderly,disabled veterans, new mothers, the injured, the sick — a problem that eventually impacts everyone in the nation.

Caregivers have few tools, few support systems and receive minimal, if any, training for these responsibilities. What innovations can we develop specifically to support the caregiver community?

Ask a collected team of leaders on the issue — from a caregiver to a psychologist — about how we can better manage the crisis, at challenges.tedmed.com.

New map of health risk: Obesity rates top 30 percent in 12 states

More than one third of U.S. of adults are obese  — with a BMI of 30 or higher — but some states have a bigger problem than others. According to a new analysis of CDC stats from the Robert Wood Johnson Foundation (RWJF) and Trust for America’s Health (TFAH), obesity rates vary among states and regions, with twelve states having an obesity rate exceeding 30 percent. Mississippi’s is highest at 34.9 percent; while Colorado’s is leanest, relatively speaking, at 20.7 percent.

The costs in terms of chronic disease and healthcare burdens are virtually incalculable.  What’s to be done to stem the epidemic?  Later this summer, RWJF and TFAH will release the 2012 edition of “F as in Fat,” an annual report that analyzes state obesity rates and policy efforts to address the epidemic, and provides policy recommendations to accelerate progress.

Read more about the report here, and details on the CDC statistics here.

Video: Albert-Laszlo Barabasi applies network theory to biology

Albert-László Barabási at TEDMED 2012

Diseases don’t really just strike locally, even though that’s how we often think of them — they affect networks throughout the body on even the smallest of levels. By helping to map intracellular protein interactions, Albert-Laszlo Barabasi hopes to trace disease tracks so better treatments can be devised.

Video: Virginia Breen and Elizabeth Bonker break autism’s silence

Virginia Breen & Elizabeth Bonker at TEDMED 2012

Because Elizabeth Bonker was unable to speak due to autism, specialists assumed she was learning challenged. Far from the case:  She’s a highly intelligent child who found her voice through writing award-winning poetry.

Fenton Studios films conversations at TEDMED: sneak preview

As leaders and innovators took the TEDMED stage to present their ideas about health and medicine today and in the future, Delegates were having their own conversations between presentations, inspired by the talks, each other, and by the Great Challenges program.

Fenton Studios filmed discussions by speakers, Delegates and Great Challenge Advocates on some of the most pressing and complex issues — topics like the role of stress and loneliness in disease, and the coming dementia tsunami — led by chief change officer Lisa Witter and executive producer Victor Neufeld. Fenton and TEDMED will release clips throughout the next few weeks; follow @fentonprogress for updates.

In this preview, Witter interviews Michael Roizen, M.D., Chief Wellness Officer of The Cleveland Clinic, and Vice President for Global Health at Johnson & Johnson, Scott Ratzan, M.D.

Patient voices at TEDMED 2012

From access to research and health data (Ben Goldacre, Leslie Saxon), and to basic

"The Missing Ingredients." Art and photo by Regina Holliday

resources (Rebecca Onie), to better understanding of autism (Virginia Breen) and balancing patient risk with potential rewards (Nick Boulis and Jonathan Glass), patient issues were a highlight of TEDMED presentations this April.

In the Hub next to the Kennedy Center, corporate partners also focused on patient needs: Philips displayed devices to help improve the patient experience; Nurture, smarter healthcare center and equipment designs geared toward unique patient needs; Johnson & Johnson, interactive experiences to help understand what it feels like to live with schizophrenia.

Delegates seemed to be on the same wavelength. “The Role of the Patient” was elected one of TEDMED’s Great Challenges for focus and discussion in the coming year; it drew the third most votes among the top 20 Challenges.

"Sacred Cow." Art and photo by Regina Holliday

And Regina Holliday, patient artist activist, captured it all poignantly, colorfully and permanently with paintings and blogs throughout the event, culminating in descriptions and presentations of her work on the Opera House stage to TEDMED partners.

Visit Holliday’s blog for her recount of the TEDMED experience and to see her interpretation of the patient perspective throughout.  As she says on her blog,  ”I often say verbally, ‘We are all patients in the end,’ and sometimes I say that visually.”

 

 

Great Challenges: Which health issues are overhyped, overlooked?

The party’s over—but for the TEDMED Great Challenges program, which is sponsored by the Robert Wood Johnson Foundation, the conversation is just beginning. Throughout the year, we’ll host a lively national dialog on the 20 Challenges chosen by the TEDMED community. The program will include TV-style interviews with leaders from across fields, a series of webinars on each of the 20 Great Challenges, and the opportunity for TEDMED community members to add their voice.

We rounded up some of the most exciting things we heard from Great Challenges

advocates over the course of the conference, from the technologies that get the biggest news (but may be overhyped) to the little-known, overlooked epidemics that may have the biggest impact on our health.

Eating right. Yes, it’s important, but why is it so hard? We asked Tracie McMillan, author of The American Way of Eating: Undercover at Walmart, Applebee’s, Farm Fields and the Dinner Table, and advocate for Challenge #31, Choosing Better Foods. “It’s not about lecturing people about eating right, but about how do we make that easier? Every community should have access to high-quality, affordable food—just as we ensure everyone has access to high-quality water,” said McMillan. “We act like healthy food is a luxury, to our detriment.” McMillan also said eating well is really about more than just food, too. It’s about fair wages, work-life balance and other factors. Sure, French women don’t get fat (arguably)—but they also have five weeks of paid vacation, covered child care and reasonable work days. Couldn’t we all eat healthfully if we had that kind of time, suggested McMillan?

McMillan shared a table with Challenge #24, Food and Technology: Balancing the Trade-offs, where advocate Wenonah Hauter, Executive Director of Food & Water Watch spoke on another food concern—addressing scarcity in developing countries. “We have decades of research and we have the tools we need today in the developed world—the real challenge is getting that to the developing world,” said Hauter.

We all know cancer’s burden on the public’s health—many of us first-hand, from a friend or family member who’s struggled with the disease. But Challenge #27 brings attention to The Overlooked Cancer Cohort: adolescents and young adults aged 15 through 39. Challenge advocate Leonard Sender said this is because of the perception that this group is young and healthy, while not as vulnerable as children, and therefore not a priority for funding or research. But the truth, Sender says, is that cancer is the disease that kills the most patients under 40 in this country. Around eight to 10 percent of breast cancer patients are young women. Sender said screening is less common in this age group, and “stage for stage,” the cancers are more aggressive and have worse outcomes. “This is the one segment of the population where we could actually see a tangible result if we put resources into it,” Sender said.

From an overlooked population to an overlooked problem, “Many people wouldn’t know there was an epidemic of loneliness,” said Jacqueline Olds, advocate for Challenge #35, The Epidemic of Isolation and Loneliness, and Associate Professor of Clinical Psychiatry and Harvard Medical School. It’s been gradual but marked, said Olds, who shared the statistics that 20 years ago people used to have an average of three confidantes they could talk to—now, as a nation, we’re down to an average of one. Loneliness and isolation are linked to a wide range of diseases and undesirable health behaviors, from depression to self-neglect and more. Some solutions could include getting doctors to ask about loneliness as a vital sign, and putting out a national media campaign to educate about the ill effects of isolation.

Special Needs Patients and Children face their own unique set of health and psychosocial issues, said Challenge #38 advocate Alan Fleischman, Clinical Professor of Pediatrics at the Albert Einstein College of Medicine—but it also represents a broader issue. “The problem of taking care of kids with special needs is really a metaphor for the burdens of any kind of chronic care. We need to empower families,” said Fleischman. In his experience, “patients need a little bit of help from the doctor, but a lot of social support. We’ve got to look to the community for resources to give the families what they really need.” “Amen to that,” responded an onlooker and TEDMED delegate, who said he had a son with autism.