From Trauma, Inspiration: 3 TEDMED Scholars and Their Journeys to Palm Springs

Vania Deonizio, Founder, Dancin Power

Vania Deonizio, a musician/dancer and founder of Dancin Power, crowd-sourced her way to TEDMED2015.

Integral to our TEDMED mission is assembling a diverse mix of Delegates to present a variety of perspectives on new ideas, trends, treatments or technologies that can contribute to health and medicine. Some exceptional individuals – people we believe would make outstanding Delegates, who would benefit greatly from joining us – qualify for scholarship subsidies if financial obstacles stand in the way of their attendance. Their stories are often inspirational, to say the least. Here are several we’re delighted to welcome to this year’s conference, kicking off today:

Vania Deonizio, Founder, Dancin Power

Dancin' Power

 

“I was born in Rio de Janeiro, Brazil to a family of musicians, and was introduced to various rhythm of music and dance very early. Growing up I faced a major childhood trauma that almost took my life. That is when I found in dance a way to escape from that horrible situation, along with freedom and hope for a better life. I started Dancin Power (we use the healing power of music and dance to improve the quality of life of hospitalized kids) to help children who, like me, find themselves stuck in difficult situations they didn’t ask for. Dancin Power gives these kids a way to express themselves in a safe welcoming environment. It provides them with an outlet to experience joy and laughter, and most importantly, it reminds them that even though they are sick and in a hospital room, they are still kids and have the right to be happy!

“A few weeks ago I found myself searching for inspiration in TED talks about innovative ideas in health; that’s when I came across TEDMED for the first time. I immediately connected with its concept and felt that Dancin Power and I belong here. We are a small nonprofit; despite the fact that I didn’t have the funds/resources to apply, I didn’t allow that to stop me from going after what I believe should happen. I did my homework and sought who I should connect with via LinkedIn and then was awarded a Partial Frontline Scholars grant. Through crowdfunding I was able to raise the remainder amount to attend the conference within 48 hours! Today I am here and couldn’t be more excited for all that is about to happen! May the inspiration, connections and opportunities for collaboration begin!”

http://www.dancinpower.org/

Jessica Harthcock, Founder, Utilize Health

Utilize Health“We all find our career or our calling through different means – maybe it’s an interest we’ve had since we were 5. Maybe it’s a hobby-turned-career. Maybe we just ‘fell into it’ (yep, that’s a pun… and it’s what I did). For me, it was an up-close and personal experience I had with the healthcare system.

“In 2004 I was practicing my springboard diving routine at a gymnastics studio, when I landed wrong and heard a crunch: I couldn’t move. I was paralyzed. My official diagnosis was a spinal cord injury with paralysis at the T3-4 level. That meant I could move my arms, but nothing below my sternum. The doctors told me the damage was permanent, and I would never walk again.

“I spent years traveling across the U.S. searching for treatment options. I enrolled in a research study, explored alternative medicines, and continued very traditional forms of physical therapy. After nearly three years, I took a step and eventually that step turned into 10 more steps. Slowly but surely I progressed. Today, I am 11 years post-injury and walk unassisted.

“Throughout the recovery process, I realized that finding treatment options wasn’t efficient. It could be improved upon in many areas; time, financial resources and energy were drained. I wasn’t alone; countless others shared my experience. Many of them heard of my success and reached out for help. By the 100th patient, I knew there had to be a better way.

“Thus, Utilize Health was born. Dedicated to making the treatment process easier for patients, Utilize Health aspires to improve patient outcomes, decrease costs, and change the lives of patients for the better.

“I started watching TED talks years ago – and now, I am inspired daily by people who share my passion for helping others and making our healthcare system better. TEDMED has been a bucket list item for several years. I’ve always been inspired by the doers and dreamers of the world (which is everyone at TEDMED). I still have to pinch myself that I’ll actually be there this year!”

http://www.utilizehealth.co

Amy Price, PhD

Amy Price, PhD“I came to this from a drastic car crash where I had significant brain and spine injuries. It was a tough path and I wanted to make it easier for others. First I was a patient advocate but the company was run by a group that ran afoul of the FDA and I realized I did not know what real research was.

“As part of my rehab and to redefine my destiny I ended up at Oxford where I am completing a DPHIL on running Public Led Online Trials where the public can research questions of interest to them and we can learn together. Here is some more information on what I am doing: One is a blog written for Oxford; another for the British Medical Journal; the third item is a video Oxford did with me in it for students with disabilities. I plan to blog for my college on this, specifically for the Oxford Thinking Campaign and on our website.”