From access to research and health data (Ben Goldacre, Leslie Saxon), and to basic
resources (Rebecca Onie), to better understanding of autism (Virginia Breen) and balancing patient risk with potential rewards (Nick Boulis and Jonathan Glass), patient issues were a highlight of TEDMED presentations this April.
In the Hub next to the Kennedy Center, corporate partners also focused on patient needs: Philips displayed devices to help improve the patient experience; Nurture, smarter healthcare center and equipment designs geared toward unique patient needs; Johnson & Johnson, interactive experiences to help understand what it feels like to live with schizophrenia.
Delegates seemed to be on the same wavelength. “The Role of the Patient” was elected one of TEDMED’s Great Challenges for focus and discussion in the coming year; it drew the third most votes among the top 20 Challenges.
And Regina Holliday, patient artist activist, captured it all poignantly, colorfully and permanently with paintings and blogs throughout the event, culminating in descriptions and presentations of her work on the Opera House stage to TEDMED partners.
Visit Holliday’s blog for her recount of the TEDMED experience and to see her interpretation of the patient perspective throughout. As she says on her blog, “I often say verbally, ‘We are all patients in the end,’ and sometimes I say that visually.”